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Current Sexual Health Reports
Erschienen in: Current Sexual Health Reports 1/2022

01.03.2022 | Male and Female Surgical Interventions (CC Carson III and JP Selph, Section Editors)

Community Engagement and Patient-Centered Implementation of Patient-Reported Outcome Measures (PROMs) in Gender Affirming Surgery: a Systematic Review

verfasst von: Emily K. Clennon, Leigh H. Martin, Sarah K. Fadich, Laura Zeigen, Gaines Blasdel, Craig Sineath, Geolani W. Dy

Erschienen in: Current Sexual Health Reports | Ausgabe 1/2022

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Abstract

Purpose of review

Analyze the utilization of patient-centered outcomes research (PCOR) methods in the literature containing patient-reported outcome measures (PROMs) for gender affirming surgery (GAS).

Recent findings

Multiple recent systematic reviews have demonstrated that the majority of PROMs used to assess GAS are either ad hoc measures never intended for validation or are neither specific to nor validated for the population or intervention being studied. This review builds on prior works with inclusion of articles related to facial and vocal GAS and presentation of PCOR recommendations and best practices based on review findings.

Summary

A systematic review of records in PubMed and Scopus using search terms related to GAS and PROMs yielded 652 total articles of which 158 were included in the final analysis. Just over half of included articles utilized validated PROMs, though only 38% of those articles utilized a PROM that had been validated in the TGNB population. Thirteen (8.2%) studies detailed the involvement of patients in PROM development as subjects, and only 4 (2.5%) utilized PCOR methods that engaged TGNB individuals as research stakeholders. Utilization of PCOR methods in research evaluating outcomes of GAS is exceedingly rare despite increasing use of PROMs over time. To collect data that are both accurate and meaningful to the TGNB population, PCOR methods must be adopted within this field.
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Metadaten
Titel
Community Engagement and Patient-Centered Implementation of Patient-Reported Outcome Measures (PROMs) in Gender Affirming Surgery: a Systematic Review
verfasst von
Emily K. Clennon
Leigh H. Martin
Sarah K. Fadich
Laura Zeigen
Gaines Blasdel
Craig Sineath
Geolani W. Dy
Publikationsdatum
01.03.2022
Verlag
Springer US
Erschienen in
Current Sexual Health Reports / Ausgabe 1/2022
Print ISSN: 1548-3584
Elektronische ISSN: 1548-3592
DOI
https://doi.org/10.1007/s11930-021-00323-6

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